Kornelia

Stories

We are parents of two children: 6 year-old Kacper and 8 month-old Kornelia. When Kacper was a baby we didn’t use any gadgets with WHITE NOISE like Whisbear. Kacper never had any problems with falling asleep, so why should we use it for Kornelia? Finally we made a decision that we wanted to try: without trying we wouldn’t know if it worked or not. When we found out that Kornelia had Down syndrome and a heart defect (AVSD), we were more than sure we would need to use Whisbear.

 

From the first hour of her life, Whisbear was Kornelia’s partner and we can definitely say that he made his work well. White noise helps Kornelia to calm down quicker but also makes her sleep longer and calmer. On the other hand Whisbear proved that her hearing is in good condition.

 

Whisbear was a true friend during any hospital tests like taking blood samples, vaccinations and especially after the heart surgery.

Kornelia had her surgery on the 19th of January 2017. We spent 4 weeks in the Royal Hospital for Sick Kids in Glasgow. Her surgery was scheduled to last for 5-6 hours but the surgeons needed over 12hours. Once they had opened her heart, they noticed that they needed to do more work to “fix” it than they were able to say after all the scans they made beforehand. The first 48 hours were anxious but she was doing good work to come back to us.

 

On the 3rd day something went wrong and without any reason we almost lost her. Kornelia’s heart needed some extra support so she was connected to ECMO machine to help her heart to keep calm and rest. She was connected to it for 4 days and after that she got better.

Whisbear was with her from the first minute she was in the Critical Care unit. The doctors and nurses were really fond of Kornelia’s friend straight away and they were putting him on for her.

 

They even agreed that when Whisbear was playing WHITE NOISE she was more calm and relaxed and her blood pressure was always stabilized. This was very helpful during the waking-up process when her paralyzing drugs were reduced: she was calm when she heard the white noise. This also helped to reduce her movements, which was very important when her chest was still “open”.

 

After 18 days in the CC unit she was moved to a cardiology ward, where Whisbear was her companion too. We could leave her room without fear because her Whisbear always took care of her and calmed her. The CRY SENSOR was very helpful: every time she started to make a noise, Whisbear helped her to calm down. For us it was very important to create a similar environment as at home.

On the 13th of February she was able to come back home- but not for long. After less than 24 hours she was back in the Critical care Unit in the Sick Kids Hospital in Edinburgh. So she needed to have all the blood tests and oxygen, and again Whisbear came to help to keep her calm and less stressed.

 

On the 21st of February she was sent home with a feeding tube. White noise was very helpful during feeding because she was very calm. When we tried to do feeding without the bear’s support she was crying so her milk was turning back in the tube.

 

After few weeks of “normality” on the 12th of March again she went back to the hospital with a virus infection and dehydration. Once again, Whisbear helped Kornelia to go through it all without stress and any extra fear.

 

During this difficult times for us, Whisbear supported us as well as we knew that he would always be next to Kornelia and help her to calm when there would be such a need. 

 

 

Above Kornelia and Kacper today. Happy together, enjoying holiday.

 

Instagram- @asiasle85
Joanna Ślesińska